Saturday, February 14, 2015

Connections

I had a discussion with a wise, dear friend recently about loneliness.  She says that sensitive individuals can feel alone even when surrounded by friends.  We are each alone in our experiences. We can be living through the same joyful or traumatic events, but how we process and feel these events is ultimately our own.

My 15 year old son, Collin, has a chronic illness and has spent significant time in the hospital.  Walking through that as a parent, I am finding that I have never felt more alone, and simultaneously I have never been more aware of connections we have with the people that cross our paths.  If we pay close attention in our world, we will find that we are never truly alone.  There are connections that happen in everyday interactions, some of which become cemented in memory forever.  We are busy people in this world.  We like to be busy. It is expected that we fill our weeks with hard work so that we can fill our children's weeks with enriching experiences.  What we forget, is to pay attention to the connections and to the time in between the committments.  We are so focused on ourselves in our frenzy, that we forget to pay attention to the silent connections we have with other human beings.  I have spent a lot of time lately, pondering what seem like random connections in every day life.  I don't know that I believe in fate, necessarily, but I am finding that I believe very strongly that people cross our paths for a reason.

 There is a silent understanding in the halls of a children's hospital.  There are 3 fraternities of families, and if you pay attention you can easily see this.  The first group is made up of families who are at the hospital for an appointment. Maybe there for the first time.  These families are showered and dressed and carry purses or jackets. They have plans for later in the day.  They go directly to their appointment and only quickly glance at the children with IV poles or no hair.  Maybe allowing themselves a brief moment to imagine "what if".  The second group of families knows worry.  Their child has an illness that requires inpatient care or surgery.  They have watched their child have painful or scary procedures.  They know what it's like to sleep in a chair at their child's bedside.  They also know that their current nightmare will be completely over soon, and normal life will resume.  The third group is a fraternity that no one wants to belong to.   These are families of children with chronic, long term, potentially life threatening illness. These families have spent countless hours/days/weeks in the hospital - either all at one time, or they are frequent flyers spending weeks or months in total.  These families know a piece of you without even having any conversation.  They look at your visitors sticker on your shirt and they know what you are living.  Enough time there, and you get to know what the different floors mean. At our children's hospital - if you are on the 5th floor you have a baby in the NICU, if you are on the 7th floor you have a critically ill child in the PICU, the 9th floor is oncology, and the 12th floor is neuro.  If your sticker says one of those floors, you are looking at a long road ahead or behind.  These families know the Child Life Staff (people hired to make life easier for kids in the hospital), and the staff in the playroom, cafeteria and front desk. They know all the nooks and crannys and special/safe places in the hospital.  These families know true fear and uncertainty.  These families have seen a child code (either in a room near their child, or terrifyingly their own child).  These parents have collectively held their breath until the code ends, and then thankfully kissed their child in the bed next to them. There is an empathy and understanding when these families pass in the hallway or elevator.

I have been trying to pay attention to these connections lately.  When my son was in the hospital recently, I kept crossing paths with another mom.  The first time we ran into eachother was in the elevator.  She looked at the sticker on my shirt and said "how's 12?".  She clearly knew what the 12th floor was, and a little of what that meant.  I responded with a brief comment, and she followed up by saying "we were just on 12 for 3 weeks, now we're on 9".  No further conversation, but I knew what that meant - 12 is neuro, and then they were transferred to 9 oncology. Her child has a brain tumor.  We crossed paths several more times and I saw her beautiful toddler daughter.  Those interactions are probably in my memory forever, and I try to send hope every time I think of that sweet girl.  It was a meaningful human connection.

Another recent experience has made me think about how important it is to pay attention to our every day connections.  We are trying very hard to manage symptoms for my son so that he can be as functional and pain free as possible.  We have started to look outside of traditional medicine a bit.  I had considered accupuncture, but my son has been reluctant and the cost can be prohibitive, so I had not taken much action.  My friend's daughter plays a club sport, and my friend was talking with one of the other moms from the team and discovered that she does accupuncture.  My friend shared Collin's story.  This other mom also has a child with a chronic illness, and likely understood our need on a different level than most.  Without ever meeting us, she decided to offer accupuncture for Collin and write off the cost of his care entirely.  These paths seem like they were clearly meant to cross.

Imagine if we start paying attention to everyone we meet.  Imagine if we get to know their story a little, how it might impact our story.  Imagine how much less alone we might feel.  What if we open ourselves up to possibility, if we focus less on our busy lives and what we are doing next, and start paying attention to the moment we are in? It seems to me that we will have so much more empathy and compassion.  We will learn so much about ourselves and others.  We will have more support and compassion given to us when we need it.  Imagine how our future could change if we open ourselves up to these connections.  Even better, imagine how we could change the future of others.